Posts tagged Chronic
Samantha Bowick: Author & Advocate | Alpha-1 Antitrypsin Deficiency

Hi everyone! My name is Samantha Bowick and I’m the author of two books Living with Endometriosis: The Complete Guide to Risk Factors, Symptoms, and Treatment Options and Living with Alpha-1 Antitrypsin Deficiency: The Complete Guide to Risk Factors, Symptoms, and Treatment Options. I decided to write Living with Endometriosis because I was going through so many different treatments for endometriosis that I really couldn’t find much information on at the time and I felt like it could possibly help others who were going through the same thing.

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I Just Got Diagnosed… Now What??

It’s been months.......maybe years. You’ve been suffering alone because no one understands what’s been going on. The doctors have been shuffling you back and forth because they don’t know what to do with you. You’ve heard “Well.....maybe it could be this. Or it could be that!” However they are really just grasping at straws and making guesses because no one really has any concrete idea. Until you finally come in contact with that ONE doctor who follows that ONE path and found you a DIAGNOSIS! Which feels like you won the lottery for a bit. But now what?? 

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Focus On The Fight | Epilepsy

Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger/advocate, their health and their advocacy work.

This week we meet Christalle, and we will highlight: EPILEPSY

Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies !!

Christalle Bodiford is an artist, writer, and adventure seeker. As an entrepreneur diagnosed with epilepsy, Christalle brings a unique perspective of empowerment that inspires others to embrace a positive mindset and live with purpose. When she's not writing or advocating, Christalle enjoys puppy snuggles with her scruffy terrier and outdoor adventures with her husband.

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Chronic Pain | Help Others Help You

Pain is just that, PAIN. It’s hurtful. Millions of people deal with some kind of pain every single day. Whether it be the acute pain of an injury, or the emotional pain of losing someone you loved so dearly. Pain is everywhere and every single person is going to deal with their pain differently.

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Focus On The Fight | Psoriatic Arthritis

Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger/advocate, their health and their advocacy work.

This week we meet Vickie, and we will highlight: Psoriatic Arthritis (PA)

Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies !!

I am married with two grown sons and a five year old grandson. My favorite hobbies are reading and fishing.

What Chronic Illness (en) have you been diagnosed with? Which one will you focus on today?

I have psoriasis and psoriatic arthritis

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Focus On The Fight | Hereditary Lymphedema

Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger/advocate, their health and their advocacy work.

This week we meet Jordyn, and we will highlight: Hereditary Lymphedema aka Primary Lymphedema.


Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies !!

I love to cuddle my service dog, read books, blog, crochet, share my story online, and talk to my friends. I also especially love to garden when it's summertime.

What Chronic Illness (es) have you been diagnosed with? Which one will you focus on today?

Hereditary Lymphedema Erythromelalgia Ehlers Danlos Syndrome Type 3 Chronic Fatigue Postural Syndrome Orthostatic Tachycardia Syndrome Polycystic Ovarian Syndrome Daily Migraines Asthma MTHFR mutation. Today I will be focusing on my Hereditary Lymphedema.

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Grieving Chronic Illness

Grief is an interesting emotion that can be felt for any number of reasons. To most people, grief is associated with the loss of a loved one, or the loss of a marriage or relationship. Most wouldn’t think that one would grieve what they’ve had to give up. Or the loss of a life once lived. But that’s exactly what I think of when I think of grief. I think about the fact that I am mourning the life I once lived and the goals I once had. The life I had before Chronic illness rocked my life. 

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Focus On The Fight | Fibromyalgia

Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger/advocate, their health and their advocacy work.

This week we meet Melissa, and we will highlight: Fibromyalgia .

Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies !!

I started to grow my own food as a hobby. I enjoy playing with my dog ​​Toby, watching TV and reading science related books.

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Salt In My Soul: An Unfinished Life | Book Review

I recently received the book “Salt In My Soul An Unfinished Life” By Mallory Smith.** Through the course of the book Mallory shares about her life with Cystic Fibrosis, and so, so much more. When I got it, I’ll be honest, I wasn’t thrilled to read it. I assumed it would be the typical story about someones foghtbfor their life, with the sappy ending that we see so many times. But that could not be further from the truth. The book is a compilation of the journal that Mallory kept during the last years of her life, that her mother put together into a book following her passing, at her request. The book takes you through the most important times in Mallory’s life while she fights for life with Cystic Fibrosis.

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Disability Blogger Award

I have graciously been nominated for the Disability Blogger Award by Jordyn from Chronically Unimaginable.  I was notified by her on one of my recent posts. Thank you so much Jordyn, this means the world to me! This is an award of recognition to those blogging in the chronic illness, mental health, disability, and special needs communities. The person responsible for starting this is Georgina from www.chronillicles.com. She decided to invent this honor because of the lack of recognition present in these communities today. What a beautiful notion, don’t you think?

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Dear Medical Provider | A Letter The Medical Community

Dear Medical Professional,


I know, it’s so easy to see a diagnosis or a medication in a chart and form judgment on someone before you ever meet them. I’ve been there, I’ve done that. I would be lying if I said I hadn’t. That being said now that I am on the other side of the bed I ask that you hold that judgement until you meet me. We aren’t all alike, just like you aren’t like your sibling or your cousin with the same last name who no one speaks of. All chronic illness patients are different. We may have the same diagnosis and take the same medications but that’s often where the similarities stop.

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Focus On The Fight | Hyperhidrosis - Maria Thomas

Welcome to Focus On The Fight, a series of interviews that will be posted every Friday, focusing on a blogger and their health.

This week we will meet Maria Thomas, she has a multitude of chronic condition including the condition we will highlight this week: HYPERHIDROSIS

Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies!! I'm a bookworm, writer, editor, and a hyperhidrosis trailblazer and patient advocate. I work full-time in marketing, and my side hustle is my advocacy work. When I'm not going 90 miles an hour, I enjoy reading (obviously), handwriting letters to my pen pals, spending time in nature and playing with my Pug, Maya.

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What’s In My Hospital Bag | 2019 Spoonie Edition

Sadly over the last few years I have spent many nights in the hospital. I even took a week long trip to Mayo Clinic In Minnesota, and have had a couple overnight trips for treatment. Thankfully, it’s been awhile and I hope I don’t jinx myself by sharing all of this.  That being said I was cleaning out my bag and thought I would share.

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Focus On The Fight | Peripartum Cardiomyopathy

Starting today there will be a new feature Friday post, that is called “Spoonie Spotlight.” Throughout this series writers with different chronic conditions will be featured. Along with a brief discussion of what their condition is and what some generic signs and symptoms are for their condition.

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Chronic Illness Symptom Tracker | You Need This!

I felt it really needed to have a symptom tracker divided by body systems where one can document what kind of issues they are having with each body system every week.

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