Focus On The Fight | Psoriatic Arthritis

Focus On The Fight | Psoriatic Arthritis

Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger/advocate, their health and their advocacy work.

This week we meet Vickie, and we will highlight: Psoriatic Arthritis (PA)

Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies !!

I am married with two grown sons and a five year old grandson. My favorite hobbies are reading and fishing.

What Chronic Illness (en) have you been diagnosed with? Which one will you focus on today?

I have psoriasis and psoriatic arthritis

Read More

Focus On The Fight | Hereditary Lymphedema

Focus On The Fight | Hereditary Lymphedema

Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger/advocate, their health and their advocacy work.

This week we meet Jordyn, and we will highlight: Hereditary Lymphedema aka Primary Lymphedema.


Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies !!

I love to cuddle my service dog, read books, blog, crochet, share my story online, and talk to my friends. I also especially love to garden when it's summertime.

What Chronic Illness (es) have you been diagnosed with? Which one will you focus on today?

Hereditary Lymphedema Erythromelalgia Ehlers Danlos Syndrome Type 3 Chronic Fatigue Postural Syndrome Orthostatic Tachycardia Syndrome Polycystic Ovarian Syndrome Daily Migraines Asthma MTHFR mutation. Today I will be focusing on my Hereditary Lymphedema.

Read More

Grieving Chronic Illness

Grieving Chronic Illness

Grief is an interesting emotion that can be felt for any number of reasons. To most people, grief is associated with the loss of a loved one, or the loss of a marriage or relationship. Most wouldn’t think that one would grieve what they’ve had to give up. Or the loss of a life once lived. But that’s exactly what I think of when I think of grief. I think about the fact that I am mourning the life I once lived and the goals I once had. The life I had before Chronic illness rocked my life. 

Read More

Focus On The Fight | Fibromyalgia

Focus On The Fight | Fibromyalgia

Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger/advocate, their health and their advocacy work.

This week we meet Melissa, and we will highlight: Fibromyalgia .

Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies !!

I started to grow my own food as a hobby. I enjoy playing with my dog ​​Toby, watching TV and reading science related books.

Read More

The Truth | It’s Okay Not To Be Okay

The Truth | It’s Okay Not To Be Okay

It’s okay......it’s okay to struggle, it’s okay to be real, it’s okay that you don’t always have your shit together. Life’s messy, especially when you live with some kind of chronic illness. Life isn’t all roses and champagne. Instead it’s full of messy houses, and dirty dishes. It’s full of down days where you can’t get out of bed, and high pain days. Life is real and that’s OKAY. When we live in a world of highlight reels and instagram perfect pictures it’s easy to forget that we live messy lives.

Read More

Focus On The Fight | Inflammatory Bowel Disease

Focus On The Fight | Inflammatory Bowel Disease

Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger/advocate, their health and their advocacy work.

This week we meet Collin Wong, and we will highlight: Inflammatory Bowel Disease, aka Crohn’s.

Before we jump into the full interview, Collin, please tell us a little about you outside of your health! Tell us about your hobbies or family!

I am a soon-to-be freshman at Case Western Reserve University, with a focus on pre-med. In fact, I hope to be a pediatric critical care physician one day! In my free time, I enjoy doing graphic design and playing the piano.



Read More

Don’t Feel Sorry For Me

I feel so bad for you.  Thanks, but there is no need for that, it is what it is..... Sometimes life hands you things you just can’t change and you just have to deal with it. Being diagnosed with some form of a chronic illness is no different. I know it seems like living with Lupus and chronic pain sucks and many days it does, but it’s no different than living with anything else. It is a PART of me, but it is not ALL of me. Just like being married is part of you, or being a mother. Yes, it’s a little different, but it’s also the same.

Read More

Look Behind The Smile….

We all have heard the saying, “A picture is worth a thousand words.” This is absolutely true.  I have learned that as someone with a chronic illness, to look deeper than the surface that is presented.  The smile that is flashed for Instagram or Facebook. If you look behind the smile and examine the eyes, wonder what is deeper and look you see a deeper story and not the facade presented to the world.  

Read More

Salt In My Soul: An Unfinished Life | Book Review

I recently received the book “Salt In My Soul An Unfinished Life” By Mallory Smith.** Through the course of the book Mallory shares about her life with Cystic Fibrosis, and so, so much more. When I got it, I’ll be honest, I wasn’t thrilled to read it. I assumed it would be the typical story about someones foghtbfor their life, with the sappy ending that we see so many times. But that could not be further from the truth. The book is a compilation of the journal that Mallory kept during the last years of her life, that her mother put together into a book following her passing, at her request. The book takes you through the most important times in Mallory’s life while she fights for life with Cystic Fibrosis.

Read More

Focus On The Fight | Coronary Artery Disease

Focus On The Fight | Coronary Artery Disease

Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger and their health.

This week we meet Maggie, she has a multitude of chronic condition including the condition we will highlight this week: Coronary Artery Disease

Before we get into Maggie’s interview let’s take just a second to look at Coronary Artery Disease.

Coronary Heart Disease (CAD) is the most common type of heart disease and is the leading cause of death in the United States in both men and women.

Read More

My Favorite Things | May 2019

My Favorite Things | May 2019

I have been compiling a list of must-have items that I have recently ordered from Amazon. They are items that have truly made a difference in my life, for the better. These are not just things that I have ordered and enjoyed, these are things that have in one way or another impacted my everyday life for the best. We all know that sometimes the little things mean the most when it comes to our everyday lives when living with a chronic illness. So I decided to share my favorite most recent purchases with you. I hope you enjoy!

Read More

Focus On The Fight | Kristi’s Story

Focus On The Fight | Kristi’s Story

Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger and their health.

This week we will meet Kristi!

Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies

I am a happy person who has an amazing life. The early years were difficult, but I did not really understand why until I was nearly 55 years old. I have been married for almost 40 years to my best friend, lover, life partner. We have two grown daughters who are also my dear friends. We love living in Maine but look forward when we will have a warmer-weather winter home. My hobbies beyond being with my family and helping others are writing, dancing and being outdoors (particularly summer fresh-water sports).

Read More

Living With Mental Illness | Kayla’s Story

When I woke up today, I found myself on the couch barely able to open my eyes. I reached for my phone to see what time it was. 10:07 AM. At this point, I had slept 23 hours since the morning before, and I went back to sleep an additional four hours before waking up to even eat something. This is a very minimal depiction of what depression looks like. My doctor calls it “leaden paralysis”, a symptom of Major Depressive Disorder, Atypical in subtype. It’s where your entire body feels like lead.

Read More

Disability Blogger Award

I have graciously been nominated for the Disability Blogger Award by Jordyn from Chronically Unimaginable.  I was notified by her on one of my recent posts. Thank you so much Jordyn, this means the world to me! This is an award of recognition to those blogging in the chronic illness, mental health, disability, and special needs communities. The person responsible for starting this is Georgina from www.chronillicles.com. She decided to invent this honor because of the lack of recognition present in these communities today. What a beautiful notion, don’t you think?

Read More

Focus On The Fight | Fibromyalgia

Focus On The Fight | Fibromyalgia

Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger and their health.

This week we will meet Pam Jessen, she has a multitude of chronic condition including the condition we will highlight this week: Fibromyalgia.

Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies !!

I am married to my incredible husband Ray, and we have one cat named Dorie. Our two kids Troy and Ashley have long flown the nest and we have three lovely grandsons (all Ashley's boys!).

Read More

Lupus Awareness Month | My Lupus Journey

Lupus Awareness Month | My Lupus Journey

Today is May 1. For most that date isn’t significant, but for me it has a big meaning. May first designates the beginning of Lupus Awareness Month. May gives me 31 days to spread awareness I about a disease that 7.55 billion people worldwide live with everyday. So I thought there was no better way to start Lupus Awareness Month than to share my Lupus Journey. Here is a brief look at the past 7 years and my Lupus Journey!!

Read More

Focus On The Fight | Mast Cell Activation Syndrome

Focus On The Fight | Mast Cell Activation Syndrome

Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a different patient advocate and their health journey.


This week we will meet Kelly, she has a multitude of chronic condition including the condition we will highlight this week: MAST CELL ACTIVATION SYNDROME (MCAS).

Read More

Dear Medical Provider | A Letter The Medical Community

Dear Medical Provider | A Letter The Medical Community

Dear Medical Professional,


I know, it’s so easy to see a diagnosis or a medication in a chart and form judgment on someone before you ever meet them. I’ve been there, I’ve done that. I would be lying if I said I hadn’t. That being said now that I am on the other side of the bed I ask that you hold that judgement until you meet me. We aren’t all alike, just like you aren’t like your sibling or your cousin with the same last name who no one speaks of. All chronic illness patients are different. We may have the same diagnosis and take the same medications but that’s often where the similarities stop.

Read More

Focus On The Fight | Hyperhidrosis - Maria Thomas

Focus On The Fight | Hyperhidrosis - Maria Thomas

Welcome to Focus On The Fight, a series of interviews that will be posted every Friday, focusing on a blogger and their health.

This week we will meet Maria Thomas, she has a multitude of chronic condition including the condition we will highlight this week: HYPERHIDROSIS

Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies!! I'm a bookworm, writer, editor, and a hyperhidrosis trailblazer and patient advocate. I work full-time in marketing, and my side hustle is my advocacy work. When I'm not going 90 miles an hour, I enjoy reading (obviously), handwriting letters to my pen pals, spending time in nature and playing with my Pug, Maya.

Read More