Posts tagged chronic pain
Samantha Bowick: Author & Advocate | Alpha-1 Antitrypsin Deficiency

Hi everyone! My name is Samantha Bowick and I’m the author of two books Living with Endometriosis: The Complete Guide to Risk Factors, Symptoms, and Treatment Options and Living with Alpha-1 Antitrypsin Deficiency: The Complete Guide to Risk Factors, Symptoms, and Treatment Options. I decided to write Living with Endometriosis because I was going through so many different treatments for endometriosis that I really couldn’t find much information on at the time and I felt like it could possibly help others who were going through the same thing.

Read More
I Just Got Diagnosed… Now What??

It’s been months.......maybe years. You’ve been suffering alone because no one understands what’s been going on. The doctors have been shuffling you back and forth because they don’t know what to do with you. You’ve heard “Well.....maybe it could be this. Or it could be that!” However they are really just grasping at straws and making guesses because no one really has any concrete idea. Until you finally come in contact with that ONE doctor who follows that ONE path and found you a DIAGNOSIS! Which feels like you won the lottery for a bit. But now what?? 

Read More
What We Wish You Understood | Working With Chronic Illness

Living with a chronic illness is hard and comes with many challenges. Including challenges most never thought they’d face, especially at such a young age. For instance, when I graduated from nursing school I never dreamed that I would only be able to work for ten years before I had to leave my job to care for myself. That being said when you think of chronic illness you wouldn’t automatically think of the fact that many who suffer from a chronic illness will have to leave the workforce long before they wanted or planned to. But it’s true, sadly, many end up having to leave their dream job or the career they loved to stay home and take care of themselves. Which in and of itself brings up challenges. The biggest being that most around us don’t understand us or our decisions to leave the workforce. Or what that looks like as far as what we can and cannot do now that we are no longer working.

Read More
Living With Chronic Pain | Life Update

The last two months have probably been some of the hardest months I’ve had since this crazy journey started. I've been in more pain and for longer than I ever thought possible. I have said too many times lately but I feel like if it has a name it has probably hurt at some point. Literally everything has hurt from the big things like my back and hips, to the smaller things like my hands and fingers. There has even been time when my HAIR and SKIN hurt.

Read More
Chronic Pain | Help Others Help You

Pain is just that, PAIN. It’s hurtful. Millions of people deal with some kind of pain every single day. Whether it be the acute pain of an injury, or the emotional pain of losing someone you loved so dearly. Pain is everywhere and every single person is going to deal with their pain differently.

Read More
Social Media | How It Is Beneficial To The Chronically Ill

Social Media…..We always hear about the negatives viewpoints and aspects of each platform. Like the fact that social media is full of highlight reels rather than what’s actually real. We only get to see what those influencer types choose to show us, which is usually only the highlights. Or the fact that the internet is full of what we will call “keyboard warriors,” who spew all kinds of nasty hatred into the comment section of any social media platform. They say things that they would NEVER say to someone’s face all because they can hide behind their screens or keyboards without any real consequences. While those are well known facts about social media, what isn’t well known, or often spoken about, is the fact that social media is a HUGE blessing to those in the chronic illness community. I’ll wait while you pick your jaw up off the floor. Did I really just say that social media is a blessing????

Read More
Focus On The Fight | Psoriatic Arthritis

Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger/advocate, their health and their advocacy work.

This week we meet Vickie, and we will highlight: Psoriatic Arthritis (PA)

Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies !!

I am married with two grown sons and a five year old grandson. My favorite hobbies are reading and fishing.

What Chronic Illness (en) have you been diagnosed with? Which one will you focus on today?

I have psoriasis and psoriatic arthritis

Read More
Focus On The Fight | Hereditary Lymphedema

Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger/advocate, their health and their advocacy work.

This week we meet Jordyn, and we will highlight: Hereditary Lymphedema aka Primary Lymphedema.


Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies !!

I love to cuddle my service dog, read books, blog, crochet, share my story online, and talk to my friends. I also especially love to garden when it's summertime.

What Chronic Illness (es) have you been diagnosed with? Which one will you focus on today?

Hereditary Lymphedema Erythromelalgia Ehlers Danlos Syndrome Type 3 Chronic Fatigue Postural Syndrome Orthostatic Tachycardia Syndrome Polycystic Ovarian Syndrome Daily Migraines Asthma MTHFR mutation. Today I will be focusing on my Hereditary Lymphedema.

Read More
Grieving Chronic Illness

Grief is an interesting emotion that can be felt for any number of reasons. To most people, grief is associated with the loss of a loved one, or the loss of a marriage or relationship. Most wouldn’t think that one would grieve what they’ve had to give up. Or the loss of a life once lived. But that’s exactly what I think of when I think of grief. I think about the fact that I am mourning the life I once lived and the goals I once had. The life I had before Chronic illness rocked my life. 

Read More
The Truth About Living With Chronic Pain

Chronic pain is something people hear about all the time. It's all over the news, the internet and basically anywhere you look. But what is it like to actually be the one to live with chronic pain? Do you ever think about the actual person behind that title? Do you ever think about how a person who lives with chronic pain has changed?

Read More
Focus On The Fight | Fibromyalgia

Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger/advocate, their health and their advocacy work.

This week we meet Melissa, and we will highlight: Fibromyalgia .

Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies !!

I started to grow my own food as a hobby. I enjoy playing with my dog ​​Toby, watching TV and reading science related books.

Read More
The Truth | It’s Okay Not To Be Okay

It’s okay......it’s okay to struggle, it’s okay to be real, it’s okay that you don’t always have your shit together. Life’s messy, especially when you live with some kind of chronic illness. Life isn’t all roses and champagne. Instead it’s full of messy houses, and dirty dishes. It’s full of down days where you can’t get out of bed, and high pain days. Life is real and that’s OKAY. When we live in a world of highlight reels and instagram perfect pictures it’s easy to forget that we live messy lives.

Read More
Why You Haven’t See Me Around Here | June Update

WOW…. June was a month for the books. I know I have been pretty MIA around here for the last month, I have been really struggling. It was a struggle just to get the things done that had to be done; much less doing things like blogging. I had all the best intentions to get all these great blogs up for you and really discuss migraine awareness month. But sadly that was just not in the cards. It was a month where it felt like everything that could go wrong, did.

Read More
Focus On The Fight | Inflammatory Bowel Disease

Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger/advocate, their health and their advocacy work.

This week we meet Collin Wong, and we will highlight: Inflammatory Bowel Disease, aka Crohn’s.

Before we jump into the full interview, Collin, please tell us a little about you outside of your health! Tell us about your hobbies or family!

I am a soon-to-be freshman at Case Western Reserve University, with a focus on pre-med. In fact, I hope to be a pediatric critical care physician one day! In my free time, I enjoy doing graphic design and playing the piano.



Read More
Don’t Feel Sorry For Me

I feel so bad for you.  Thanks, but there is no need for that, it is what it is..... Sometimes life hands you things you just can’t change and you just have to deal with it. Being diagnosed with some form of a chronic illness is no different. I know it seems like living with Lupus and chronic pain sucks and many days it does, but it’s no different than living with anything else. It is a PART of me, but it is not ALL of me. Just like being married is part of you, or being a mother. Yes, it’s a little different, but it’s also the same.

Read More
Hope or Hype? | New Opiate Prescribing Guidelines

The CDC just released its new guidelines to help doctors understand the looser guidelines so that patients may have some relief from the forced tapers or forced termination of medications. This has resulted in diminished quality of life, driving some into using illicit narcotics, or sadly driving some to suicide since there has been no relief.

Read More
Dear Medical Provider | A Letter The Medical Community

Dear Medical Professional,


I know, it’s so easy to see a diagnosis or a medication in a chart and form judgment on someone before you ever meet them. I’ve been there, I’ve done that. I would be lying if I said I hadn’t. That being said now that I am on the other side of the bed I ask that you hold that judgement until you meet me. We aren’t all alike, just like you aren’t like your sibling or your cousin with the same last name who no one speaks of. All chronic illness patients are different. We may have the same diagnosis and take the same medications but that’s often where the similarities stop.

Read More
What’s In My Hospital Bag | 2019 Spoonie Edition

Sadly over the last few years I have spent many nights in the hospital. I even took a week long trip to Mayo Clinic In Minnesota, and have had a couple overnight trips for treatment. Thankfully, it’s been awhile and I hope I don’t jinx myself by sharing all of this.  That being said I was cleaning out my bag and thought I would share.

Read More
Focus On The Fight | Endometriosis

Welcome to this weeks Spoonie Spotlight. A new series where writers with different chronic conditions will be featured. Along with a brief discussion of what their condition is and what some generic signs and symptoms are for their condition.

This weeks post will highlight: ENDOMETRIOSIS

Read More
This Ones For You | Open Letter To The World

Hello world! This one is for YOU!! No matter what we do or how hard we try to change things there will always be some level of judgement in the world. Especially in this time where it seems like everyone is shaming others for something. That being said most of us do our best to keep that judgement to ourselves, and don't stare people down. We have the kindness not to make comments when we think someone shouldn't be using a wheelchair, or parking in a handicapped spot or even just wearing a mask out in public. Sadly, there are those  people who can’t seem to keep their thoughts and judgments to them self. This letter is for those who can’t keep their comments to themselves or feel the need to stare others down.

Read More