Posts tagged chronic pain patients
I Just Got Diagnosed… Now What??

It’s been months.......maybe years. You’ve been suffering alone because no one understands what’s been going on. The doctors have been shuffling you back and forth because they don’t know what to do with you. You’ve heard “Well.....maybe it could be this. Or it could be that!” However they are really just grasping at straws and making guesses because no one really has any concrete idea. Until you finally come in contact with that ONE doctor who follows that ONE path and found you a DIAGNOSIS! Which feels like you won the lottery for a bit. But now what?? 

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Living With Chronic Pain | Life Update

The last two months have probably been some of the hardest months I’ve had since this crazy journey started. I've been in more pain and for longer than I ever thought possible. I have said too many times lately but I feel like if it has a name it has probably hurt at some point. Literally everything has hurt from the big things like my back and hips, to the smaller things like my hands and fingers. There has even been time when my HAIR and SKIN hurt.

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Chronic Pain | Help Others Help You

Pain is just that, PAIN. It’s hurtful. Millions of people deal with some kind of pain every single day. Whether it be the acute pain of an injury, or the emotional pain of losing someone you loved so dearly. Pain is everywhere and every single person is going to deal with their pain differently.

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Social Media | How It Is Beneficial To The Chronically Ill

Social Media…..We always hear about the negatives viewpoints and aspects of each platform. Like the fact that social media is full of highlight reels rather than what’s actually real. We only get to see what those influencer types choose to show us, which is usually only the highlights. Or the fact that the internet is full of what we will call “keyboard warriors,” who spew all kinds of nasty hatred into the comment section of any social media platform. They say things that they would NEVER say to someone’s face all because they can hide behind their screens or keyboards without any real consequences. While those are well known facts about social media, what isn’t well known, or often spoken about, is the fact that social media is a HUGE blessing to those in the chronic illness community. I’ll wait while you pick your jaw up off the floor. Did I really just say that social media is a blessing????

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Focus On The Fight | Psoriatic Arthritis

Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger/advocate, their health and their advocacy work.

This week we meet Vickie, and we will highlight: Psoriatic Arthritis (PA)

Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies !!

I am married with two grown sons and a five year old grandson. My favorite hobbies are reading and fishing.

What Chronic Illness (en) have you been diagnosed with? Which one will you focus on today?

I have psoriasis and psoriatic arthritis

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Focus On The Fight | Hereditary Lymphedema

Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger/advocate, their health and their advocacy work.

This week we meet Jordyn, and we will highlight: Hereditary Lymphedema aka Primary Lymphedema.


Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies !!

I love to cuddle my service dog, read books, blog, crochet, share my story online, and talk to my friends. I also especially love to garden when it's summertime.

What Chronic Illness (es) have you been diagnosed with? Which one will you focus on today?

Hereditary Lymphedema Erythromelalgia Ehlers Danlos Syndrome Type 3 Chronic Fatigue Postural Syndrome Orthostatic Tachycardia Syndrome Polycystic Ovarian Syndrome Daily Migraines Asthma MTHFR mutation. Today I will be focusing on my Hereditary Lymphedema.

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Grieving Chronic Illness

Grief is an interesting emotion that can be felt for any number of reasons. To most people, grief is associated with the loss of a loved one, or the loss of a marriage or relationship. Most wouldn’t think that one would grieve what they’ve had to give up. Or the loss of a life once lived. But that’s exactly what I think of when I think of grief. I think about the fact that I am mourning the life I once lived and the goals I once had. The life I had before Chronic illness rocked my life. 

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The Truth About Living With Chronic Pain

Chronic pain is something people hear about all the time. It's all over the news, the internet and basically anywhere you look. But what is it like to actually be the one to live with chronic pain? Do you ever think about the actual person behind that title? Do you ever think about how a person who lives with chronic pain has changed?

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Focus On The Fight | Fibromyalgia

Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger/advocate, their health and their advocacy work.

This week we meet Melissa, and we will highlight: Fibromyalgia .

Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies !!

I started to grow my own food as a hobby. I enjoy playing with my dog ​​Toby, watching TV and reading science related books.

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The Truth | It’s Okay Not To Be Okay

It’s okay......it’s okay to struggle, it’s okay to be real, it’s okay that you don’t always have your shit together. Life’s messy, especially when you live with some kind of chronic illness. Life isn’t all roses and champagne. Instead it’s full of messy houses, and dirty dishes. It’s full of down days where you can’t get out of bed, and high pain days. Life is real and that’s OKAY. When we live in a world of highlight reels and instagram perfect pictures it’s easy to forget that we live messy lives.

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Why You Haven’t See Me Around Here | June Update

WOW…. June was a month for the books. I know I have been pretty MIA around here for the last month, I have been really struggling. It was a struggle just to get the things done that had to be done; much less doing things like blogging. I had all the best intentions to get all these great blogs up for you and really discuss migraine awareness month. But sadly that was just not in the cards. It was a month where it felt like everything that could go wrong, did.

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Focus On The Fight | Inflammatory Bowel Disease

Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger/advocate, their health and their advocacy work.

This week we meet Collin Wong, and we will highlight: Inflammatory Bowel Disease, aka Crohn’s.

Before we jump into the full interview, Collin, please tell us a little about you outside of your health! Tell us about your hobbies or family!

I am a soon-to-be freshman at Case Western Reserve University, with a focus on pre-med. In fact, I hope to be a pediatric critical care physician one day! In my free time, I enjoy doing graphic design and playing the piano.



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Don’t Feel Sorry For Me

I feel so bad for you.  Thanks, but there is no need for that, it is what it is..... Sometimes life hands you things you just can’t change and you just have to deal with it. Being diagnosed with some form of a chronic illness is no different. I know it seems like living with Lupus and chronic pain sucks and many days it does, but it’s no different than living with anything else. It is a PART of me, but it is not ALL of me. Just like being married is part of you, or being a mother. Yes, it’s a little different, but it’s also the same.

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Hope or Hype? | New Opiate Prescribing Guidelines

The CDC just released its new guidelines to help doctors understand the looser guidelines so that patients may have some relief from the forced tapers or forced termination of medications. This has resulted in diminished quality of life, driving some into using illicit narcotics, or sadly driving some to suicide since there has been no relief.

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What’s In My Hospital Bag | 2019 Spoonie Edition

Sadly over the last few years I have spent many nights in the hospital. I even took a week long trip to Mayo Clinic In Minnesota, and have had a couple overnight trips for treatment. Thankfully, it’s been awhile and I hope I don’t jinx myself by sharing all of this.  That being said I was cleaning out my bag and thought I would share.

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No One Asked For This

Let’s just be really honest. NO ONE ever asks to live with pain. Whether it be the short term pain of an illness or Injury….

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