Salt In My Soul: An Unfinished Life | Book Review

I recently received the book “Salt In My Soul An Unfinished Life” By Mallory Smith.** Through the course of the book Mallory shares about her life with Cystic Fibrosis, and so, so much more. When I got it, I’ll be honest, I wasn’t thrilled to read it. I assumed it would be the typical story about someones foghtbfor their life, with the sappy ending that we see so many times. But that could not be further from the truth. The book is a compilation of the journal that Mallory kept during the last years of her life, that her mother put together into a book following her passing, at her request. The book takes you through the most important times in Mallory’s life while she fights for life with Cystic Fibrosis.

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Focus On The Fight | Coronary Artery Disease

Focus On The Fight | Coronary Artery Disease

Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger and their health.

This week we meet Maggie, she has a multitude of chronic condition including the condition we will highlight this week: Coronary Artery Disease

Before we get into Maggie’s interview let’s take just a second to look at Coronary Artery Disease.

Coronary Heart Disease (CAD) is the most common type of heart disease and is the leading cause of death in the United States in both men and women.

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My Favorite Things | May 2019

My Favorite Things | May 2019

I have been compiling a list of must-have items that I have recently ordered from Amazon. They are items that have truly made a difference in my life, for the better. These are not just things that I have ordered and enjoyed, these are things that have in one way or another impacted my everyday life for the best. We all know that sometimes the little things mean the most when it comes to our everyday lives when living with a chronic illness. So I decided to share my favorite most recent purchases with you. I hope you enjoy!

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Focus On The Fight | Kristi’s Story

Focus On The Fight | Kristi’s Story

Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger and their health.

This week we will meet Kristi!

Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies

I am a happy person who has an amazing life. The early years were difficult, but I did not really understand why until I was nearly 55 years old. I have been married for almost 40 years to my best friend, lover, life partner. We have two grown daughters who are also my dear friends. We love living in Maine but look forward when we will have a warmer-weather winter home. My hobbies beyond being with my family and helping others are writing, dancing and being outdoors (particularly summer fresh-water sports).

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Living With Mental Illness | Kayla’s Story

When I woke up today, I found myself on the couch barely able to open my eyes. I reached for my phone to see what time it was. 10:07 AM. At this point, I had slept 23 hours since the morning before, and I went back to sleep an additional four hours before waking up to even eat something. This is a very minimal depiction of what depression looks like. My doctor calls it “leaden paralysis”, a symptom of Major Depressive Disorder, Atypical in subtype. It’s where your entire body feels like lead.

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Disability Blogger Award

I have graciously been nominated for the Disability Blogger Award by Jordyn from Chronically Unimaginable.  I was notified by her on one of my recent posts. Thank you so much Jordyn, this means the world to me! This is an award of recognition to those blogging in the chronic illness, mental health, disability, and special needs communities. The person responsible for starting this is Georgina from www.chronillicles.com. She decided to invent this honor because of the lack of recognition present in these communities today. What a beautiful notion, don’t you think?

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Focus On The Fight | Fibromyalgia

Focus On The Fight | Fibromyalgia

Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger and their health.

This week we will meet Pam Jessen, she has a multitude of chronic condition including the condition we will highlight this week: Fibromyalgia.

Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies !!

I am married to my incredible husband Ray, and we have one cat named Dorie. Our two kids Troy and Ashley have long flown the nest and we have three lovely grandsons (all Ashley's boys!).

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Lupus Awareness Month | My Lupus Journey

Lupus Awareness Month | My Lupus Journey

Today is May 1. For most that date isn’t significant, but for me it has a big meaning. May first designates the beginning of Lupus Awareness Month. May gives me 31 days to spread awareness I about a disease that 7.55 billion people worldwide live with everyday. So I thought there was no better way to start Lupus Awareness Month than to share my Lupus Journey. Here is a brief look at the past 7 years and my Lupus Journey!!

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Focus On The Fight | Mast Cell Activation Syndrome

Focus On The Fight | Mast Cell Activation Syndrome

Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a different patient advocate and their health journey.


This week we will meet Kelly, she has a multitude of chronic condition including the condition we will highlight this week: MAST CELL ACTIVATION SYNDROME (MCAS).

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Hope or Hype? | New Opiate Prescribing Guidelines

Hope or Hype? | New Opiate Prescribing Guidelines

The CDC just released its new guidelines to help doctors understand the looser guidelines so that patients may have some relief from the forced tapers or forced termination of medications. This has resulted in diminished quality of life, driving some into using illicit narcotics, or sadly driving some to suicide since there has been no relief.

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Dear Medical Provider | A Letter The Medical Community

Dear Medical Provider | A Letter The Medical Community

Dear Medical Professional,


I know, it’s so easy to see a diagnosis or a medication in a chart and form judgment on someone before you ever meet them. I’ve been there, I’ve done that. I would be lying if I said I hadn’t. That being said now that I am on the other side of the bed I ask that you hold that judgement until you meet me. We aren’t all alike, just like you aren’t like your sibling or your cousin with the same last name who no one speaks of. All chronic illness patients are different. We may have the same diagnosis and take the same medications but that’s often where the similarities stop.

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Focus On The Fight | Hyperhidrosis - Maria Thomas

Focus On The Fight | Hyperhidrosis - Maria Thomas

Welcome to Focus On The Fight, a series of interviews that will be posted every Friday, focusing on a blogger and their health.

This week we will meet Maria Thomas, she has a multitude of chronic condition including the condition we will highlight this week: HYPERHIDROSIS

Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies!! I'm a bookworm, writer, editor, and a hyperhidrosis trailblazer and patient advocate. I work full-time in marketing, and my side hustle is my advocacy work. When I'm not going 90 miles an hour, I enjoy reading (obviously), handwriting letters to my pen pals, spending time in nature and playing with my Pug, Maya.

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What’s In My Hospital Bag | 2019 Spoonie Edition

What’s In My Hospital Bag | 2019 Spoonie Edition

Sadly over the last few years I have spent many nights in the hospital. I even took a week long trip to Mayo Clinic In Minnesota, and have had a couple overnight trips for treatment. Thankfully, it’s been awhile and I hope I don’t jinx myself by sharing all of this.  That being said I was cleaning out my bag and thought I would share.

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Focus On The Fight |Rapid Cycling Cyclothymia

Focus On The Fight |Rapid Cycling Cyclothymia

Welcome to Focus On The Fight, a series of interviews that will be posted every Friday, focusing on a blogger and their health.

This week we will meet Maya Augelli. She has a multitude of chronic condition including the condition we will highlight this week: Rapid Cycling Cyclothymia.

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Focus On The Fight | Stroke

Focus On The Fight | Stroke

Welcome to Focus On The Fight, a series of interviews that will be posted every Friday, focusing on a blogger and their health.


This week we will meet Lisa Deck. She has a multitude of chronic condition including the condition we will highlight this week: STROKE

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Focus On The Fight | Myositis

Focus On The Fight | Myositis

Welcome to Focus On The Fight, a series of interviews that will be posted every Friday, focusing on a blogger and their unique  health conditions.
This week we will meet Amy Nora. Amy has a multitude of chronic condition including the condition we will highlight this week: Myositis

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Dealing With Life’s Expectations | Infertility

Dealing With Life’s Expectations | Infertility

It seems like no matter what you do these days there is always some expectation that you aren’t living up to. Or someone is shaming you because you aren’t meeting said expectations. As you grow up it’s expected that you graduate high school. Once you do that it is expected that you go to college and graduate and get a good paying job. After you graduate from college you should be getting married and having a baby while maintaining your career.

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Focus On The Fight | Endometriosis

Focus On The Fight | Endometriosis

Welcome to this weeks Spoonie Spotlight. A new series where writers with different chronic conditions will be featured. Along with a brief discussion of what their condition is and what some generic signs and symptoms are for their condition.

This weeks post will highlight: ENDOMETRIOSIS

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Focus On The Fight | Celiac Disease

Focus On The Fight | Celiac Disease

Welcome to this weeks Spoonie Spotlight. A new series where writers with different chronic conditions will be featured. Along with a brief discussion of their condition and a few generic signs and symptoms are for their condition.


This weeks post will highlight:

CELIAC DISEASE.

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