Focus On The Fight | Epilepsy

Focus On The Fight | Epilepsy

Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger/advocate, their health and their advocacy work.

This week we meet Christalle, and we will highlight: EPILEPSY

Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies !!

Christalle Bodiford is an artist, writer, and adventure seeker. As an entrepreneur diagnosed with epilepsy, Christalle brings a unique perspective of empowerment that inspires others to embrace a positive mindset and live with purpose. When she's not writing or advocating, Christalle enjoys puppy snuggles with her scruffy terrier and outdoor adventures with her husband.

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Living With Chronic Pain | Life Update

Living With Chronic Pain | Life Update

The last two months have probably been some of the hardest months I’ve had since this crazy journey started. I've been in more pain and for longer than I ever thought possible. I have said too many times lately but I feel like if it has a name it has probably hurt at some point. Literally everything has hurt from the big things like my back and hips, to the smaller things like my hands and fingers. There has even been time when my HAIR and SKIN hurt.

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Chronic Pain | Help Others Help You

Chronic Pain | Help Others Help You

Pain is just that, PAIN. It’s hurtful. Millions of people deal with some kind of pain every single day. Whether it be the acute pain of an injury, or the emotional pain of losing someone you loved so dearly. Pain is everywhere and every single person is going to deal with their pain differently.

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Social Media | How It Is Beneficial To The Chronically Ill

Social Media | How It Is Beneficial To The Chronically Ill

Social Media…..We always hear about the negatives viewpoints and aspects of each platform. Like the fact that social media is full of highlight reels rather than what’s actually real. We only get to see what those influencer types choose to show us, which is usually only the highlights. Or the fact that the internet is full of what we will call “keyboard warriors,” who spew all kinds of nasty hatred into the comment section of any social media platform. They say things that they would NEVER say to someone’s face all because they can hide behind their screens or keyboards without any real consequences. While those are well known facts about social media, what isn’t well known, or often spoken about, is the fact that social media is a HUGE blessing to those in the chronic illness community. I’ll wait while you pick your jaw up off the floor. Did I really just say that social media is a blessing????

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Focus On The Fight | Psoriatic Arthritis

Focus On The Fight | Psoriatic Arthritis

Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger/advocate, their health and their advocacy work.

This week we meet Vickie, and we will highlight: Psoriatic Arthritis (PA)

Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies !!

I am married with two grown sons and a five year old grandson. My favorite hobbies are reading and fishing.

What Chronic Illness (en) have you been diagnosed with? Which one will you focus on today?

I have psoriasis and psoriatic arthritis

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WEGO HEALTH AWARDS | 2019 Nominations

I am excited to announce that I have been nominated for the WEGO Patient Leader Hero award and WEGO Best In Show BLOG. WEGO Health is a mission-driven company connecting healthcare with the experience, skills, and insights of patient leaders. They are the world’s largest network of patient leaders, working across virtually all health conditions and topics. Click here to learn more about their Patient Leader Network

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Focus On The Fight | Hereditary Lymphedema

Focus On The Fight | Hereditary Lymphedema

Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger/advocate, their health and their advocacy work.

This week we meet Jordyn, and we will highlight: Hereditary Lymphedema aka Primary Lymphedema.


Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies !!

I love to cuddle my service dog, read books, blog, crochet, share my story online, and talk to my friends. I also especially love to garden when it's summertime.

What Chronic Illness (es) have you been diagnosed with? Which one will you focus on today?

Hereditary Lymphedema Erythromelalgia Ehlers Danlos Syndrome Type 3 Chronic Fatigue Postural Syndrome Orthostatic Tachycardia Syndrome Polycystic Ovarian Syndrome Daily Migraines Asthma MTHFR mutation. Today I will be focusing on my Hereditary Lymphedema.

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Grieving Chronic Illness

Grieving Chronic Illness

Grief is an interesting emotion that can be felt for any number of reasons. To most people, grief is associated with the loss of a loved one, or the loss of a marriage or relationship. Most wouldn’t think that one would grieve what they’ve had to give up. Or the loss of a life once lived. But that’s exactly what I think of when I think of grief. I think about the fact that I am mourning the life I once lived and the goals I once had. The life I had before Chronic illness rocked my life. 

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The Truth About Living With Chronic Pain

The Truth About Living With Chronic Pain

Chronic pain is something people hear about all the time. It's all over the news, the internet and basically anywhere you look. But what is it like to actually be the one to live with chronic pain? Do you ever think about the actual person behind that title? Do you ever think about how a person who lives with chronic pain has changed?

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Focus On The Fight | Fibromyalgia

Focus On The Fight | Fibromyalgia

Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger/advocate, their health and their advocacy work.

This week we meet Melissa, and we will highlight: Fibromyalgia .

Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies !!

I started to grow my own food as a hobby. I enjoy playing with my dog ​​Toby, watching TV and reading science related books.

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Why You Haven’t See Me Around Here | June Update

WOW…. June was a month for the books. I know I have been pretty MIA around here for the last month, I have been really struggling. It was a struggle just to get the things done that had to be done; much less doing things like blogging. I had all the best intentions to get all these great blogs up for you and really discuss migraine awareness month. But sadly that was just not in the cards. It was a month where it felt like everything that could go wrong, did.

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Focus On The Fight | Inflammatory Bowel Disease

Focus On The Fight | Inflammatory Bowel Disease

Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger/advocate, their health and their advocacy work.

This week we meet Collin Wong, and we will highlight: Inflammatory Bowel Disease, aka Crohn’s.

Before we jump into the full interview, Collin, please tell us a little about you outside of your health! Tell us about your hobbies or family!

I am a soon-to-be freshman at Case Western Reserve University, with a focus on pre-med. In fact, I hope to be a pediatric critical care physician one day! In my free time, I enjoy doing graphic design and playing the piano.



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Don’t Feel Sorry For Me

I feel so bad for you.  Thanks, but there is no need for that, it is what it is..... Sometimes life hands you things you just can’t change and you just have to deal with it. Being diagnosed with some form of a chronic illness is no different. I know it seems like living with Lupus and chronic pain sucks and many days it does, but it’s no different than living with anything else. It is a PART of me, but it is not ALL of me. Just like being married is part of you, or being a mother. Yes, it’s a little different, but it’s also the same.

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Look Behind The Smile….

We all have heard the saying, “A picture is worth a thousand words.” This is absolutely true.  I have learned that as someone with a chronic illness, to look deeper than the surface that is presented.  The smile that is flashed for Instagram or Facebook. If you look behind the smile and examine the eyes, wonder what is deeper and look you see a deeper story and not the facade presented to the world.  

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Are You Living With Intention

I’ve been following Rachel Hollis and Sadie’s Jane Sabin lately on social media and they talk a lot about living your life with intention. More than that, living each day with intention. As I listened I thought sure I life with intention, we all do. But do we? Do we really live each day with intention? Do we get up each morning and have a true plan for that day, knowing exactly what we want out of that day? Or do we get up thinking it would be nice if something happened, but having no real plan of of how to get there? I can’t speak for you or anyone else but for me on most days it’s the later.

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Salt In My Soul: An Unfinished Life | Book Review

I recently received the book “Salt In My Soul An Unfinished Life” By Mallory Smith.** Through the course of the book Mallory shares about her life with Cystic Fibrosis, and so, so much more. When I got it, I’ll be honest, I wasn’t thrilled to read it. I assumed it would be the typical story about someones foghtbfor their life, with the sappy ending that we see so many times. But that could not be further from the truth. The book is a compilation of the journal that Mallory kept during the last years of her life, that her mother put together into a book following her passing, at her request. The book takes you through the most important times in Mallory’s life while she fights for life with Cystic Fibrosis.

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Focus On The Fight | Coronary Artery Disease

Focus On The Fight | Coronary Artery Disease

Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger and their health.

This week we meet Maggie, she has a multitude of chronic condition including the condition we will highlight this week: Coronary Artery Disease

Before we get into Maggie’s interview let’s take just a second to look at Coronary Artery Disease.

Coronary Heart Disease (CAD) is the most common type of heart disease and is the leading cause of death in the United States in both men and women.

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My Favorite Things | May 2019

My Favorite Things | May 2019

I have been compiling a list of must-have items that I have recently ordered from Amazon. They are items that have truly made a difference in my life, for the better. These are not just things that I have ordered and enjoyed, these are things that have in one way or another impacted my everyday life for the best. We all know that sometimes the little things mean the most when it comes to our everyday lives when living with a chronic illness. So I decided to share my favorite most recent purchases with you. I hope you enjoy!

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Focus On The Fight | Kristi’s Story

Focus On The Fight | Kristi’s Story

Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger and their health.

This week we will meet Kristi!

Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies

I am a happy person who has an amazing life. The early years were difficult, but I did not really understand why until I was nearly 55 years old. I have been married for almost 40 years to my best friend, lover, life partner. We have two grown daughters who are also my dear friends. We love living in Maine but look forward when we will have a warmer-weather winter home. My hobbies beyond being with my family and helping others are writing, dancing and being outdoors (particularly summer fresh-water sports).

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Living With Mental Illness | Kayla’s Story

When I woke up today, I found myself on the couch barely able to open my eyes. I reached for my phone to see what time it was. 10:07 AM. At this point, I had slept 23 hours since the morning before, and I went back to sleep an additional four hours before waking up to even eat something. This is a very minimal depiction of what depression looks like. My doctor calls it “leaden paralysis”, a symptom of Major Depressive Disorder, Atypical in subtype. It’s where your entire body feels like lead.

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