Temperatures are starting to drop, leaves are changing and pumpkin spice is everywhere you look. For most fall is the best time of year, a time that brings football, hoodies and Halloween. But for those with chronic illness or who are immunocompromised fall means something completely different. Fall means that the cold and flu season is upon us and we have to be more vigilant than ever to make sure we protect ourselves from illness. It almost seems unfair that we have to say goodbye to the wonderful summer temperatures and longer days, and also welcome the cooler temperatures that often cause pain and bring illness.Read More
Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger/advocate, their health and their advocacy work.
This week we meet Jordyn, and we will highlight: Hereditary Lymphedema aka Primary Lymphedema.
Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies !!
I love to cuddle my service dog, read books, blog, crochet, share my story online, and talk to my friends. I also especially love to garden when it's summertime.
What Chronic Illness (es) have you been diagnosed with? Which one will you focus on today?
Hereditary Lymphedema Erythromelalgia Ehlers Danlos Syndrome Type 3 Chronic Fatigue Postural Syndrome Orthostatic Tachycardia Syndrome Polycystic Ovarian Syndrome Daily Migraines Asthma MTHFR mutation. Today I will be focusing on my Hereditary Lymphedema.Read More
Dear Medical Professional,
I know, it’s so easy to see a diagnosis or a medication in a chart and form judgment on someone before you ever meet them. I’ve been there, I’ve done that. I would be lying if I said I hadn’t. That being said now that I am on the other side of the bed I ask that you hold that judgement until you meet me. We aren’t all alike, just like you aren’t like your sibling or your cousin with the same last name who no one speaks of. All chronic illness patients are different. We may have the same diagnosis and take the same medications but that’s often where the similarities stop.
Welcome to Focus On The Fight, a series of interviews that will be posted every Friday, focusing on a blogger and their health.
This week we will meet Maria Thomas, she has a multitude of chronic condition including the condition we will highlight this week: HYPERHIDROSIS
Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies!! I'm a bookworm, writer, editor, and a hyperhidrosis trailblazer and patient advocate. I work full-time in marketing, and my side hustle is my advocacy work. When I'm not going 90 miles an hour, I enjoy reading (obviously), handwriting letters to my pen pals, spending time in nature and playing with my Pug, Maya.Read More
Sadly over the last few years I have spent many nights in the hospital. I even took a week long trip to Mayo Clinic In Minnesota, and have had a couple overnight trips for treatment. Thankfully, it’s been awhile and I hope I don’t jinx myself by sharing all of this. That being said I was cleaning out my bag and thought I would share.Read More
Welcome to this weeks Spoonie Spotlight. A new series where writers with different chronic conditions will be featured. Along with a brief discussion of what their condition is and what some generic signs and symptoms are for their condition.
This weeks post will highlight: ENDOMETRIOSISRead More
Welcome to this weeks Spoonie Spotlight. A new series where writers with different chronic conditions will be featured. Along with a brief discussion of their condition and a few generic signs and symptoms are for their condition.
This weeks post will highlight:
CELIAC DISEASE.Read More
Hello world! This one is for YOU!! No matter what we do or how hard we try to change things there will always be some level of judgement in the world. Especially in this time where it seems like everyone is shaming others for something. That being said most of us do our best to keep that judgement to ourselves, and don't stare people down. We have the kindness not to make comments when we think someone shouldn't be using a wheelchair, or parking in a handicapped spot or even just wearing a mask out in public. Sadly, there are those people who can’t seem to keep their thoughts and judgments to them self. This letter is for those who can’t keep their comments to themselves or feel the need to stare others down.Read More
Today, I stumbled upon a video from a mom who has a son who is on the autism spectrum, and has been for many years. She was talking about an email she had recently received from a mom who was in the thick of a new diagnosis. Her child was recently diagnosed and the mom was struggling, as most people do when they receive the diagnosis of a chronic condition. She asked the seasoned mom if it gets better. She wanted to know if life gets easier at some point. As I watched this woman explain her answer it made me think about how I would answer this question if I was asked. What would I say to someone who was newly diagnosed as someone who has lived with a chronic illness for seven years?Read More
Living with a chronic Illness can be hard, plain and simple. Living with an invisible illness, one that causes chronic pain, is harder. It has become such a common practice for people to quickly judge another person based on their condition or based on their use of narcotic pain meds. It has even become true within our healthcare system and within the government. Sadly it is not uncommon for a patient to be looked upon as an “addict” simply because of a medication that they take. Much of this has happened in response to the media coverage of the Opioid Crisis and how the government is handling the crisis.Read More
Did you know that HEART DISEASE and STROKES are the NUMBER ONE killer in WOMEN?? Causing nearly 1 in 3 deaths each years?Read More
One of my main goals for 2019 is to spend more time in the kitchen. And no not necessarily eating, but cooking as well. So I’ve been looking for and trying new recipes. In fact I made a couple really good dishes recently and thought I would share them and the stories behind them with you.Read More
Disability......Has almost become a dirty world for those who are trying to gain disability due to some life altering condition and have been denied. Filing for disability is a long and arduous process at bestRead More
Lately I’ve noticed a disturbing trend, healthcare providers that don’t take the time to actually listen to their patients. Or providers that act more like bullies than providers.Read More
This time of year it seems like everyone is sick. Colds and stomach bugs and even the FLU. But sometimes it’s hard to differentiate between a cold or the full blown flu especially for those of us with weakened immune systems.Read More
Roughly 3.4 million Americans have epilepsy and 1 in 10 people in the United States will have at least one seizure in their lifetime.Read More