Posts in BLOG
Disability Blogger Award

I have graciously been nominated for the Disability Blogger Award by Jordyn from Chronically Unimaginable.  I was notified by her on one of my recent posts. Thank you so much Jordyn, this means the world to me! This is an award of recognition to those blogging in the chronic illness, mental health, disability, and special needs communities. The person responsible for starting this is Georgina from www.chronillicles.com. She decided to invent this honor because of the lack of recognition present in these communities today. What a beautiful notion, don’t you think?

Read More
Focus On The Fight | Fibromyalgia

Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a blogger and their health.

This week we will meet Pam Jessen, she has a multitude of chronic condition including the condition we will highlight this week: Fibromyalgia.

Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies !!

I am married to my incredible husband Ray, and we have one cat named Dorie. Our two kids Troy and Ashley have long flown the nest and we have three lovely grandsons (all Ashley's boys!).

Read More
Lupus Awareness Month | My Lupus Journey

Today is May 1. For most that date isn’t significant, but for me it has a big meaning. May first designates the beginning of Lupus Awareness Month. May gives me 31 days to spread awareness I about a disease that 7.55 billion people worldwide live with everyday. So I thought there was no better way to start Lupus Awareness Month than to share my Lupus Journey. Here is a brief look at the past 7 years and my Lupus Journey!!

Read More
Focus On The Fight | Mast Cell Activation Syndrome

Welcome to Focus On The Fight, a series of interviews that will be posted weekly, focusing on a different patient advocate and their health journey.


This week we will meet Kelly, she has a multitude of chronic condition including the condition we will highlight this week: MAST CELL ACTIVATION SYNDROME (MCAS).

Read More
Hope or Hype? | New Opiate Prescribing Guidelines

The CDC just released its new guidelines to help doctors understand the looser guidelines so that patients may have some relief from the forced tapers or forced termination of medications. This has resulted in diminished quality of life, driving some into using illicit narcotics, or sadly driving some to suicide since there has been no relief.

Read More
Dear Medical Provider | A Letter The Medical Community

Dear Medical Professional,


I know, it’s so easy to see a diagnosis or a medication in a chart and form judgment on someone before you ever meet them. I’ve been there, I’ve done that. I would be lying if I said I hadn’t. That being said now that I am on the other side of the bed I ask that you hold that judgement until you meet me. We aren’t all alike, just like you aren’t like your sibling or your cousin with the same last name who no one speaks of. All chronic illness patients are different. We may have the same diagnosis and take the same medications but that’s often where the similarities stop.

Read More
Focus On The Fight | Hyperhidrosis - Maria Thomas

Welcome to Focus On The Fight, a series of interviews that will be posted every Friday, focusing on a blogger and their health.

This week we will meet Maria Thomas, she has a multitude of chronic condition including the condition we will highlight this week: HYPERHIDROSIS

Before we dive into the heavy stuff, please tell us all a little about yourself outside of your health! About your family or your hobbies!! I'm a bookworm, writer, editor, and a hyperhidrosis trailblazer and patient advocate. I work full-time in marketing, and my side hustle is my advocacy work. When I'm not going 90 miles an hour, I enjoy reading (obviously), handwriting letters to my pen pals, spending time in nature and playing with my Pug, Maya.

Read More
What’s In My Hospital Bag | 2019 Spoonie Edition

Sadly over the last few years I have spent many nights in the hospital. I even took a week long trip to Mayo Clinic In Minnesota, and have had a couple overnight trips for treatment. Thankfully, it’s been awhile and I hope I don’t jinx myself by sharing all of this.  That being said I was cleaning out my bag and thought I would share.

Read More
Dealing With Life’s Expectations | Infertility

It seems like no matter what you do these days there is always some expectation that you aren’t living up to. Or someone is shaming you because you aren’t meeting said expectations. As you grow up it’s expected that you graduate high school. Once you do that it is expected that you go to college and graduate and get a good paying job. After you graduate from college you should be getting married and having a baby while maintaining your career.

Read More
Focus On The Fight | Endometriosis

Welcome to this weeks Spoonie Spotlight. A new series where writers with different chronic conditions will be featured. Along with a brief discussion of what their condition is and what some generic signs and symptoms are for their condition.

This weeks post will highlight: ENDOMETRIOSIS

Read More
Focus On The Fight | Celiac Disease

Welcome to this weeks Spoonie Spotlight. A new series where writers with different chronic conditions will be featured. Along with a brief discussion of their condition and a few generic signs and symptoms are for their condition.


This weeks post will highlight:

CELIAC DISEASE.

Read More
Focus On The Fight | Peripartum Cardiomyopathy

Starting today there will be a new feature Friday post, that is called “Spoonie Spotlight.” Throughout this series writers with different chronic conditions will be featured. Along with a brief discussion of what their condition is and what some generic signs and symptoms are for their condition.

Read More
This Ones For You | Open Letter To The World

Hello world! This one is for YOU!! No matter what we do or how hard we try to change things there will always be some level of judgement in the world. Especially in this time where it seems like everyone is shaming others for something. That being said most of us do our best to keep that judgement to ourselves, and don't stare people down. We have the kindness not to make comments when we think someone shouldn't be using a wheelchair, or parking in a handicapped spot or even just wearing a mask out in public. Sadly, there are those  people who can’t seem to keep their thoughts and judgments to them self. This letter is for those who can’t keep their comments to themselves or feel the need to stare others down.

Read More
Does It Get Better? | Living With A Chronic Illness

Today, I stumbled upon a video from a mom who has a son who is on the autism spectrum, and has been for many years. She was talking about an email she had recently received from a mom who was in the thick of a new diagnosis. Her child was recently diagnosed and the mom was struggling, as most people do when they receive the diagnosis of a chronic condition. She asked the seasoned mom if it gets better. She wanted to know if life gets easier at some point. As I watched this woman explain her answer it made me think about how I would answer this question if I was asked. What would I say to someone who was newly diagnosed as someone who has lived with a chronic illness for seven years?

Read More
Chronic Pain | What The Media Doesn’t Tell You

 Living with a chronic Illness can be hard, plain and simple. Living with an invisible illness, one that causes chronic pain, is harder. It has become such a common practice for people to quickly judge another person based on their condition or based on their use of narcotic pain meds. It has even become true within our healthcare system and within the government. Sadly it is not uncommon for a patient to be looked upon as an “addict” simply because of a medication that they take. Much of this has happened in response to the media coverage of the Opioid Crisis and how the government is handling the crisis.

Read More
Living With An Invisible Disability

 Living with a chronic invisible illness is HARD! When you live with a condition that can’t be seen you have to deal with so much. Not only because the daily suffering isn’t easily explained to others, but because every where you go someone seems to be judging you. People always assume that just because you don’t appear disabled that you are just lazy

Read More